Support Links

Facing a diagnosis of Trisomy for your child or caring for a child with Trisomy (whatever the number or type( partial,mosaic or full)) support is available.
 As most Trisomy children are fairly rare it may not be that there is another family close by. However links through social networking and websites have enabled parents to connect with each other like never before. Below are some of the links and sites to look for support. In the couple of years I have been a part of this community I have been amazed at the support other parents offer. The trisomy community is one you would never choose necessarily to be a part of. The children and parents that make up this community are some of the most wonderful people you will have the privledge of meeting.

Support Links

--Support Organization for Trisomy 18, 13, and Related Disorders
http://www.trisomy.org/

--Chromosome 18 Registry & Research Society
http://www.chromosome18.org/

--Living with Trisomy 13
http://www.livingwithtrisomy13.org/

--Trisomy Advocacy Group (T.A.G)
http://www.trisomyhelp.org/

-- Hope for Trisomy
http://www.hopefortrisomy.org/


--Noah's Never Ending Rainbow
http://noahsneverendingrainbow.org/

Facebook has many parent groups also. Most of these are closed but you can ask to join via message

www.facebook.com/groups/T18Mommies/

www.facebook.com/groups/TrisomyAngelParents/

www.facebook.com/groups/TrisomySOFT/

www.facebook.com/groups/trisomyfamilies/

http://www.facebook.com/#!/pages/SOFT-Australia-Support-for-Trisomy-1318-in-Australia/136979783071736


Current Research Project by TRIS (tracking rare incident syndromes)

https://www.facebook.com/TrisomyTRISproject