Lachlan was born in 2010. During our pregnancy we were given a 1:2 risk of trisomy 21 ( Down's Syndrome) or trisomy 18 ( Edward's Syndrome). We never confirmed this risk and it was only after birth we found out that Lachlan had trisomy 18. Lachlan continues to defy the odds. This is his journey
Thursday, 13 February 2014
Things I like
Information on People first Language. A person with disabilities is foremost a person. They should always be described as a person with a condition not as the condition. For example Lachlan has trisomy18. We don't have trisomy children, we have children with a trisomy. Check out this helpful chart:
http://www.inclusionproject.org/nip_userfiles/file/People%20First%20Chart.pdf
Thursday, 6 February 2014
Playing
What I like to do and how I move
I love my hanging toys
I am lifting both my legs and bottom into the air when I lay(sometimes it is not good to be to close as I sometimes let one off in this position)
Spending more and more time on my tummy instead of just going for the roll (video about a minute long)Friday, 17 January 2014
Lachlan investigating playdough
Another mum posted a link for playdough. with a really simple recipe. Cornflour and Conditioner. We decided to make it for Lachlan. Smells great. Wish I had this recipe ages ago Link below for recipe. Love the expressions on his Face
No Flash Photos Mummy!
This is my Favourite
Monday, 13 January 2014
Pictures January 2014
Just Chilling
My size pet( new Guinea pig Cookie)
Sister pic to the one for March trisomy awareness
Saturday, 14 December 2013
Thursday, 25 July 2013
Lachlan is Three
Wow how did that happen. Three years we are very thankful for. happy Birthday Lachlan
Sleeping in his present a blow up ball pit
blended birthday cake
Family Holiday
Last Month we had the opportunity to have a family holiday for three weeks. We were granted a week away in Forster NSW at Ronald McDonald holiday accommodation. The accommodation is provided at no cost to families that live with a child with a life limiting condition. We appreciated this opportunity so much and decided since the trip to Forster would be a round drive of 1600kms that we would add an extra 2 weeks on and an extra 3400kms so we could see friends family and snow.
Our concerns were that Lachlan may get sick or not handle the amount of driving. However he did brilliantly and we once again realise you must take all opportunities when they are there.
Hope you enjoy the photos
Our concerns were that Lachlan may get sick or not handle the amount of driving. However he did brilliantly and we once again realise you must take all opportunities when they are there.
Hope you enjoy the photos
Outside Cabin at Forster
not looking at road anymore
rugged up
for the SNOW!!
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