A little bit of Pear

We finally got a food processor for Lachlan. We are going slow and continuing with his formula and supplementing with veges and fruit. He had peas yesterday and some pear today. Here are the photos.

just pear and water

aren't they cute

down the hatch so to speak

playing afterwards

yesterdays peas

prior to my haircut last week

 

Rollercoaster

Yesterday this is a post I wrote on facebook.

Rachel Lachlan

Last night I put Lachlan in a sitting position and he stayed there for a few minutes. Very exciting. Then last night I had a dream he was around four and walking around just a few steps. Obviously this is just a possibility but it was a nice dream to have.until reading some of the things other mums said I wouldn't even have ever had hope for this happening. I remain grateful for whatever movement and thankful.

 

 

A very positive post things were looking good and happy. Today different story. Rick had to take Lachlan to the ER again 4th visit in 6 weeks. Vomiting again with coughing worried about dehydration. Don't think UTI this time. Starting to suspect new formula but we will wait and see.

 

This is the first time Rick has taken Lachlan to the ER and I have stayed home. I am glad he can but it is an anxious time being at home. They didn't get up to the ward until 2.30am.

 

I am going to work today. I am really struggling with having to. When you have a small business there is no sick leave and employees and suppliers have to be paid. At the same time we are struggling with our tenant paying rent haphazardly.

 

Hoping the dip in this rollercoaster doesn't last to long and they can give us answers for Lachlan and he feels better soon.

Update
That was Tuesday. Today is Thursday and guess what Lachlan is back home. I drove down to the hospital yesterday and Rick and Lachlan were packed up ready to come home. He is still very crackly in the chest. This time upper respiratory infection is the reason for the vomits. But 24 hours on the drip helped enormously.

I really want to Thank all the staff at Nambour Hospital whether they see this I won't know but I am sending it out there. Lachlan gets great care and I mean care they really seem to care for him as a person and are also proud of all he has achieved.

Things to come out of this visit. We will return to infratrini as his formula, we will be getting a blender and starting fruit/vegetable feeds There is a new take home piece of equipment that we can do a sleep study at home that we will be able to use in December hopefully.

As far as our tennnt goes I am also putting it out there that they do the right thing and do pay the nearly four weeks behind. They have agreed to move out next Friday so within a month we will be back home home. Ahhh move here we come.

 

 

Ode to Can

My Dad always said there is no such word as can't. There is only can and not and they are seperate words. He meant it as advice so that you can believe anything is possible. He was obviously ahead of his time as the commonwealth bank has now picked up what he was telling me in primary school. Last night the girls had a school concert and one of Hannah's classmate read this poem. Positive thinking does work.

Ode to Can

There's a four lettered word
As offensive as any
It holds back the few
Puts a stop to the many.
You can't climb that mountain
You can't cross the sea
You can't become anything you want to be.
He can't hit a century
They can't find a cure.
She can't think about leaving
or searching for more.
Because can't is a word with a habit of stopping
The ebb and flow of ideas
It keeps dropping itself where we know
in our hearts it's not needed
And saying "don't go"
when we could have succeeded.
But those four little letters
That end with a T
They can change in an instant
When shortened to three.
We can take off the T
We can do it today
We can move forward not back
We can find our own way.
We can build we can run
We can follow the sun
We can push we can pull
We can say I'm someone
Who refuses to believe
That life can't be better
With the removal of one
Insignificant letter.

Hannah playing clarinet solo last night

and just for laughs our bull decided to eat Lachlan's onesie when it was hanging on the line

Lachlan goes to Daycare

Yes that's right Lachlan had a few hours at day care this morning. I am so excited about it that I am posting before photos on Rick camera are here. He did really well and even PAINTED. So exciting.

We hope he can continue to enjoy day care once a week for the extra stimulation it will provide him. Of course if he gets sick that's the end of daycare until he is older.

 

Chase community giving is an American organisation that has money to give to American charities. It is a simple facebook click to help two trisomy charities that could use funds to support research and families when they are needing emotional support. The trisomy community thanks you.

Links below
Hope for Trisomy 13 and 18:
https://apps.facebook.com/chasecommunitygiving/charity/view/ein/20-5808571?ref=b76a3e401d

SOFT - Support Organization for Trisomy:
https://apps.facebook.com/chasecommunitygiving/charity/view/ein/94-2781004?ref=b76a3e401d

When I was a very little baby

My husband Rick recently found these photos of Lachlan from when he was very new. So pleased to find them and share.

Look at me

August 2012 three trips to hospital Virus, then UTI then unknown and the at the last visit to the ER the Peadiatrician acknowlegded that may be something still wasn't quiet right but because his stats were good, UTI not back and he had a couple of feeds in the ER without vomiting if I was comfortable I could take Lachlan home. This is the first time that's happened. Before if we have gone to the ER  we have been admitted. She said we probably know what we are doing taking care of him.

Posting some photos and small video of what Lachlan is up to

Head control and holding on

Thinking(where are you taking me Dad?)

Oh on a teacup ride

Up

and Up

and Over

that was fun let's do it again